A place where families of children who died as a result of ARPKD (Autosomal Recessive Polycystic Kidney Disease) can meet and share their stories, love and support.
Parents who have received an adverse diagnosis in the neonatal stage can contact us for support as well. Many parents don't learn that their child has ARPKD until after birth. All parents are welcome to join even if you are carrying to term, have a child currently receiving medical care, or have lost a child.
Truly this site is a place of healing, understanding, sharing and friendships.